Skip to main content

Patient Representative Committee

The patient voice in clinical trial research

Canadian Cancer Trials Group (CCTG) recognizes the value and importance of engaging patients, including the patient voice in all aspects of the clinical trial life-cycle. Integrating the patient perspective into the CCTG’s overall strategic agenda ensures the research agenda has the greatest impact on cancer patients in Canada and around the world.

CCTG has implemented a model of dedicated public and patient involvement by including the Patient Representative, who are patient volunteers recruited to disease site committees similar to academic committee members with a three year extendable term.

  • The role of the CCTG Patient Representative has evolved to integrate the patient perspective into many steps of the research process with the aim of:
    • research questions that matter to patients, and
    • improved accrual
  • CCTG is committed to implementing best practices and materials to foster and facilitate patient engagement

If you are looking for more information about the CCTG Patient Representative Committee please contact Yvonne Murray, Patient Engagement Lead for information.

CCTG is not currently looking for volunteers at this time. For more information about current committee openings please contact Nancy Dusharm.

Priorities in cancer research

CCTG Patient Representatives participated in a facilitated workshop session to identify six research topics most important to cancer patients and caregivers. For the results >


CCTG Patient Representative Committee

Welcome to Patient Representative Lindsay Clarke

Welcome to Patient Representative Lindsay Clarke

CCTG is thrilled to welcome Lindsay Clarke, who will be supporting the Genitourinary Disease Site Committee as a Patient Representative. 

Lindsay Clarke is a registered nurse and mother who lives in Fort Saskatchewan, Alberta. She has a passion for caring for others and she has been volunteering with Prostate Cancer Canada (Cancer Canada) for the last 14 years. Prostate cancer is common amongst the men in Lindsay’s family, she tragically lost her father to prostate cancer in 2010, he was only 58 years old.

More >>
 
Welcome to Patient Representative Deb Clark - Gynecologic Disease site committee

Welcome to Patient Representative Deb Clark

The CCTG Patient Representative Committee is pleased to welcome Deb Clark who will support the Gynecologic Disease site committee. Deb lives in Regina and her journey began when her mom was diagnosed with ovarian cancer, now a 26-year cancer survivor. Deb supported her mom as her caregiver through three additional, primary cancers and was her husband’s caregiver when he had oral cancer. 

More >>
 
MAC29 A new breast cancer clinical trial looks at a de-escalated treatment option

A new breast cancer clinical trial looks at a de-escalated treatment option for patients with early stage triple negative breast cancer.

CCTG MAC29 is investigating whether treatment with immunotherapy versus observation in people with early-stage triple-negative breast cancer (TNBC) who had a good response after initial treatment with chemotherapy and immunotherapy is really necessary.

More >>
 
Welcome to Patient Representative Michelle Audoin

Welcome to Patient Representative Michelle Audoin

Please join the Patient Representative Committee in welcoming Michelle Audoin who will be supporting the Breast Disease Site committee.

More >>